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Hi Friends and Customers,
Since I have been so unproductive lately it's time
for an update on MJ. Last November my wife Christine and I decided
that MJ was getting sick too much in daycare and that she should
stay home with me. I found that I got more work done than with her in
daycare because she wasn't sick all the time. Once we made the decision
we started looking for people to help here in my home office so that I
can get caught up with all the new work I have been getting. Volunteers
and Hab-Aids were doing a great job working with MJ while I worded
on getting caught up. That worked great for a couple months and then one
of the volunteers decided to go back to her home in Japan and a great
hab-aid was offered an excellent full-time job. Various other events have
made it difficult for other volunteers and helpers to pick up the load
so I am doing most MJ's daytime care. It is really wonderful to
spend the time with her but I feel torn between my business commitments
and my responsibilities as a parent. It seems like both are being short
changed.
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The good news is that all the work we have been doing
with MJ, and has been a lot, is paying off. We are seeing progress in
many areas of development. It is so exciting to see her more comfortable
with being upright and getting closer to sitting up by herself on the
floor and crawling. She recently was fitted with braces for her feet and
ankles and the progress has been thrilling. It appears that her legs and
trunk control are more advanced than her arm control and strength It's
possible that she will walk before she crawls. She is also advancing with
her oral motor skills and is eating more challenging foods and forming
different sounds. Still no words though.
With her being upright more and more her seizures are
getting to be a big issue. They only last for a second but they happen
several times a day. She often will loose head control for a moment and
bang her head on whatever in in front of her. It is very difficult to
see this happen but there is no way to anticipate it. We have been working
on getting them under control but have not been completely successful.
We are making progress and all the many therapies she is doing are helping.
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In June we are going the Seattle to meet with the doctor
that treated her hypsarrhythmia, for more testing. He believes that she
needs one more supplement to stop the seizures but cannot figure out which
one it is. The testing will give him more data. These tests in June are
another reason for this letter so that you will know that I will be out
of the office for about a week. I plan on doing some work that week and
will be answering email and phone calls as time is available. If you have
any projects that need to be address in person before that week please
let me know. Finally I want to thank you for being so patient with me
over the last year or so.
I have to apologize to everyone for the missed deadlines,
dropped balls and generally slow progress on the projects. I am so tired
of making excuses and I am praying this turns around soon, that MJ
gets caught up and that I get caught up.
Take Care,
Rich Larsen
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